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Видео ютуба по тегу Kristen Wheeden
Kristen Wheeden: American Porphyria Foundation and Disease Overview
Kristen Wheeden: New and Emerging Treatment Options for Porphria
International Porphyria Awareness Week PAG Perspectives: U.S.
Rare Disease Day 2021 Patient Panel: How Care and Research Have Changed During COVID 19
American Porphyria Foundation's Focus on Physician Education
International Porphyria Awareness Week PAG Perspectives: Around the Globe
Challenges of Diagnosing Porphyria
CPAG Webinar: Working with Industry in the Conduct of Clinical Trials 1
EPP related liver disease: A patient friendly summary of the 23 evidence-based consensus guidelines
UPA Treatment with Panhematin
Caregiver Perspectives: Caring for Someone with Acute Hepatic Porphyria (AHP)
Sue - Living with Acute Hepatic Porphyria (AHP)
Living with Porphyria
Patient Stories: Porphyria
Dr. Kristen VanHeyst
Raili Kauppinen, EAN 2020 – ENVISION Study in Patients With Acute Hepatic Porphyria
Porphyria: Diagnosing a rare disease
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